Data Governance Concerns Raised Over UK’s care.data Project

By on

Monitoring oxygen and blood pressureby Angela Guess

Nick Renaud-Komiya of the Helath Service Journal reports, “NHS data chiefs have raised ‘concerns in respect to the governance arrangements’ of the pioneering care.data project, according to papers published last week.  The news comes at a critical time for NHS England as it attempts to finalise the business plan for the project, which involves the extraction and linking of patient identifiable data from patients’ records, which it estimates will cost ‘over £50m’. Health and Social Care Information Centre board papers said the body’s chair, Kingsley Manning, would write to the Department of Health to outline the concerns.”

He continues, “An action plan from the information centre’s December meeting included in the document said: ‘The chair noted that the board had some concerns in respect to the governance arrangements for the [care.data] programme. The chair took an action to write to the Department of Health sponsor, he would copy this letter to [Sir] Malcolm Grant, the chair of NHS England’s board.’  However, a spokeswoman for the information centre toldHSJ no such letter had been sent and a ‘request for a further discussion’ had been made instead. She refused to comment on the details of the governance concerns. Under the project, patient identifiable data will be extracted from patients’ GP records and then linked with patients’ hospital data by the information centre. NHS England wants to create a dataset stretching over the whole patient care pathway which will be made available to clinicians, commissioners and researchers.”

Read more here.

Leave a Reply

We use technologies such as cookies to understand how you use our site and to provide a better user experience. This includes personalizing content, using analytics and improving site operations. We may share your information about your use of our site with third parties in accordance with our Privacy Policy. You can change your cookie settings as described here at any time, but parts of our site may not function correctly without them. By continuing to use our site, you agree that we can save cookies on your device, unless you have disabled cookies.
I Accept